The NH Rare Disorders Association works to ensure high quality medical care and a high quality of life for NH residents living with rare diseases. We offer a variety of services to accomplish this goal. Our activities fall into three general categories.
Direct education to our local health providers is one of the best ways to quickly improve diagnosis and treatment for our NH patients. We offer a variety of educational options for all types of medical, mental health, and allied health professionals. Click here for more information. We welcome invitations and do what we can to accommodate requests.
We monitor local and federal legislation to look for issues that will impact patients with rare diseases and their families. We try to educate our members about the impact of legislation and how to be effective advocates. We are always working to build relationships with NH Legislators. Click here for more information about our advocacy efforts.
The NH RDA believes that spreading awareness of rare disorders in the community can drive changes in society, spur new research, encourage change in clinical approaches, and build legislative support for bills that improve life for those impacted with rare disorders. We have info tables, educational talks, health fairs and more! Would you like us to bring an awareness event to your community? Contact us with a request! Click here for info about our recent and upcoming events.